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We the People demand….

14 Oct

Bill of Rights


We have a constitution that is over 200 years old.  It remains one of the most remarkable documents in the history of Man.  We Americans will always be the first union of people to have a Government that is subservient … that serves the people.  Today, we need to consider what changes to that document should be made.

The digital age has crept up on most of us and we need to consider the implications of a digital world.  We live in an era of exponential changes.  For the most part our digital lives feel like a convenient extension of what we have always known but, do not be deceived.  Our phones still allow us to make phone calls… but allow our every movement to be tracked.  Our cars still provide transportation…but they record everything about our car including where we go.  Our TV still provides “entertainment”… but keeps track of everything we watch.  Our banking, insurance, healthcare, credit, tax and investment information is recorded in detail.  We haven’t changed what we do but the information about what we do has changed.  We freely (unknowingly and without options) give more and more information away to our Corporate Oligarchy in exchange for convenience.  We are giving away control of our Liberty and our FreedomWe must stop doing this and blaming corporations for the problems we have created.

It is possible that most of the problems that we have with our Government and the corporations we interact with today stem from the misunderstanding that not all data is the same!  We need to understand that our information is something We keep and let others look at.  We need to control it not let others control it.  We shouldn’t just give it away or let it out of our control.  Ever!  We need a different information management model for the future.  This is a BIG change for the better.  We know we need to get our privacy back and keep it and the first step needs to be to recognize that not all data is the same!

Information is not just information and data is not just data and that is what We the People are all missing.  Information and data comes in all sorts of forms and formats.  Some data can be made available to everyone while other forms, such as Personal Data, should not.

The Personal Data Coalition believes We the People need to take back our Personal Data, our Liberty and our Freedom! The information that we create is our personal property and should never be out of our control. It starts the moment we are born and ends sometime after we are no longer here.   Our Personal Data is unique to each of us.

Our Personal Data should be kept in a single network connected location accessible at all times but not be out of that persons control.  If someone needs to see it, we should know who it is and grant them access.  (Which means that we need free and open access to our Personal Data at all times) If the data is accessed by warrant and properly served then our Sovereign Government has that right.  We believe and support the rule of law…and we now need a law that gives our Personal Data the status of Personal Property.  The Fourth Amendment gives protections to our personal property and it needs to explicitly include our Personal Data.

The Fourth Amendment:

Every subject has a right to be secure from all unreasonable searches, and seizures of his person, his houses, his papers, and all his possessions. All warrants, therefore, are contrary to this right, if the cause or foundation of them be not previously supported by oath or affirmation; and if the order in the warrant to a civil officer, to make search in suspected places, or to arrest one or more suspected persons, or to seize their property, be not accompanied with a special designation of the persons or objects of search, arrest, or seizure: and no warrant ought to be issued but in cases, and with the formalities, prescribed by the laws.

We ask (or DEMAND?) that our Constitutional Watchdogs work to include our Personal Data as our personal property and have Fourth Amendment Rights granted to our Personal Data.  We think it is appropriate to update the Constitution to take into account the changes brought on by the advent of computers and digital technologies.  Two Hundred Years is a long time.

Make our Personal Data our Personal Property.

All electronic data that a person creates or is created for that person shall be that person’s property.  All rights to that data shall remain with the person that created the data and all searches, seizures shall require a proper warrant as prescribed by law.

It is for this reason, that we believe it is important to raise awareness to the imbalance of power in our lives.  We believe the first demand should be to give American Citizens back their Personal Property.   We Americans should consider a world that is much more efficient, accurate and cost effective using a Personal Data Archive ™ system.  Our information must be accessible in a secure manner at all times from any location and under the control of the owner of that information.  Our Personal Data has value to us, but only when it is in our control.


No Privacy

26 May

I think people have given up on having a sense of privacy online. Here is a comment from a local Social Media Group about his perception on the privacy issue in light of the latest Facebook questions.

What’s the big deal?

“Your privacy was dead long before Facebook made this change,” Schwartz said. “Privacy died a long time ago.”

Marketers have been collecting all kinds of personal data on web users for the better part of a decade, Schwartz said, and sometimes its more personal tidbits that anyone would be willing to share on Facebook. “Marketers aren’t doing this to be malicious, they’re doing it to optimize your web experience … to sell you a car.”

And it’s not just in Facebook. Anytime you send an e-mail, surf a website for a product, or offer an online review, information is captured, tracked and passed along to a marketer. The only way to opt out of the information sharing is to opt out of offering the information in the first place.

The bottom line is clear, Schwartz said: “Quit disclosing crap you don’t want people to see.”

If we think that we can control what others know by not posting things that we don’t want others to see, hear, read or infer we are missing the many uses of a social network.  You have no control of what others may post, say, photograph or capture on video.  I don’t think the problem is just about what we think we can control.  I think the problem with privacy is all of the data that we have no control over.


As our lives continue to become more and more digital we have more and more to try and control, in more and more places.  If we don’t start to manage all aspects of our digital selves and begin to think about how to approach this problem we will surely be unable to control it.

Don’t think that it is appropriate for others to have your personal data.  It just isn’t theirs.

Join our discussion about personal data.  Let us know what you think.

Changing the model of information management and protecting personal data is very important.

Protecting personal data cannot be accomplished if you give it to others.  Once it is shared it is not private.

We first need to realize there is another model, that supports the privacy of the individual and still allows society to function.

We need to define the problem and help build awareness of the issues and the alternatives.

We need to build a legal framework for a digital world that supports our beliefs, values and freedoms.

We need to develop laws that protect individuals personal data, privacy and property.

We need to re-tool the information management industry to honor and adhere to privacy laws and to develop their software applications in accordance with good privacy protection.

We need to have networks that support our information management digital world needs.  The current model is broken.  Access to information should not be metered, filtered, monitored, or restricted in any manner.  I call this open networking.  Network Neutrality is a framework for support the current model.

We need to gather our information into a single place that can be protected, supported and managed easily.  Each individual has his own information storage system and it only contains their information.  It serves a single individual.

We need to separate data and applications.  We need better data standards.  We need better applications. We need a new system for storing individual data.

We have to know that the world operates on information and we have to begin to understand the value of our information.  It is not free and should not be shared without our approval.  It is currency.  We need to value our information.

The individual’s freedom for the pursuit of happiness, for life and the expression of ourselves in our work, thoughts and deeds is dependent on having information that is reliable, truthful and accessible.   Without having control of your information your freedom is at risk.

“Free” Internet Service

26 Apr

How much should each one of us pay to have access to the internet?

I think it should be something like the annual pass fee for the National Parks.

(This is taken from the National Parks Service FAQ )

How many employees are in the National Park Service?

Permanent, Temporary, and Seasonal – Approximately 20,500 diverse professionals

Volunteers in Parks – 145,000

How many people visit the National Parks?

Total recreation visitors to the National Parks in 2009: 285,579,941

Visit the Public Use Statistics for more detailed information.

What is the National Park Service Budget?

FY 2010 Enacted – $3.16 billion

FY 2011 Request – $3.14 billion

How do I obtain a park pass?

Visitors can obtain park passes by visiting their nearest park site. Most sites have passes available, however it is recommended to call a      park prior to your visit. Learn more about the America the Beautiful – National Parks and Federal Recreation Lands Pass.

(note: based on the annual 2009 visitors and the 2010 budget that is like $11.00 per person)

And,  if you are older yeah, you get a discount….maybe like 50%

Here is what I think I should pay…

Remember there are 350 Million individuals. Even if two fifths of them paid, that would be 140 Million individuals

@$10/year that would be $1.4Billion dollars per year

@$20/year that would be $2.8 Billion dollars per year

Since the internet charges for both ingress and egress traffic (they charge you and the person you are connecting to) they get paid twice for most traffic.

I vote for “free” being less than $20.00 / year for individual internet access.  Let them get the rest from the companies that we connect to.

Most of the internet facilities I have been to are “lights out” (nobody works there) and their costs are for equipment and electricity.  It doesn’t take a lot of people to run the internet.  The equipment is depreciated so the companies get tax breaks on the equipment and the expenses as the costs of business.

Oh yeah, if we made it easy to get a wireless connection (no password) I doubt we would need many customer service people (no password reset).  Companies don’t need much support after installation and most of it can be done remotely.

The internet by definition is “best efforts” delivery so I am not paying for or getting quality of service.

I can afford $20.00 and that includes access at home and away.  Make sure I have Wi-Fi and I will only use my cell when I can’t get Wi-Fi service.  So I get it “free” on my cell phone plan too.

Everyone needs internet access – Net Neutrality

26 Apr

“The internet is global”

[but the global governance of the internet is not recognized or well known or that functional]

“all media is moving to the internet”

[Government censorship or regulation is only available on regulated communications services.  Currently the internet is not under the jurisdiction of any government agency.]

These comments can be heard in this video from Bill Moyer’s Journal It is short and worth watching.

Everyone needs access to the internet.

It should be “free” <$20.00 /year for individuals but organizations and  Companies will have to pay.

The use of the internet is for access to our information and because “all media is moving to the internet” it will be the way we get our general news and information in the future if not already today.   When all of our personal information is online we will have to have open access to the internet as the means to survive.  It will be just like the air we breath.  We will have to have it.  Take it away and we will be unable to function.  It is very important and a necessary resource for our digital future.

Missouri Hospital Association Data Reporting Mandate

03 Apr

Since 1993 all Missouri hospitals have been required to report personal data on all hospital patients receiving care.  Data has been collected beginning in 1986 and Kansas and Missouri are jointly collecting data since 2000.   Reporting data is sent on CD’s (Compact Discs) monthly to member hospitals.  (I would guess without any security or encryption.)  That is a lot of CD’s.  I wonder if all of them are accounted for?  Have any been “thrown away”?

In a recent meeting in February 18, 2010 they have started to enforce rules about a 1% error threshold with the quality of data.  Here is a summary of the February 18 meeting.  I wonder if they have provided any historical data of provider error rates?

HIDI will provide an overview of the guidelines for data submission, including the collection, editing and correction of discharge data.

HIDI recently conduct regional meetings at MHA-member hospitals to review HIDI’s inpatient and outpatient discharge collection process. Staff provided an overview of the guidelines for data submission, including the collection, editing and correction of discharge data. Staff also provided an update on the required discharge data submission to the state.

In November, the Missouri Department of Health and Senior Services notified hospitals and ambulatory surgical centers of its intent to enforce the 1 percent field level error threshold for reporting patient abstract data included in 19 CSR 10-33.010. The rule, effective since Dec. 31, 1992, established procedures for state reporting of patient abstract data for inpatients and outpatients by hospitals and ASCs. HIDI processes and reports discharge data for most MHA-member hospitals and for HIDI-contracted ASCs. According to DHSS, enforcement of the 1 percent error threshold will begin with federal fiscal year 2010’s first quarter data submission — discharges between Oct. 1 and Dec. 31, 2009. Reporting organizations not able to meet the 1 percent error threshold must submit a corrective plan of action to DHSS.

The full report can be found here.

(click on this image to enlarge)

In addition to the personal data required the medical diagnosis, condition, procedure codes, charges, patient disposition, physicians and medical record number were provided.

This information is kept in it’s original form and can be used for other purposes if approved by the HIDI Data Release Advisory Committee appointed by the director.  Unique patient data can be used for detailed studies though subsequent release of data cannot identify patient, physician or provider.

In a letter dated November 18, 1992 from Kenneth L.  Kuebler, Executive Vice President of HIDI,  he provided a concern about this data collection process.

“7.              In addition, legal counsel has brought to our attention the fact that compliance with certain of your reporting requirements will place hospitals in violation of a federal patient confidentiality statute (I will provide the precise citation later when it is provided to me) that precludes the release of the identity of patients treated for drug or alcohol abuse.  The rules will need to reflect this restriction and exempt from the reporting requirements the name or social security number of patients discharged for these types of treament.”

I wonder if compliance to this Federal Patient confidentiality statute was monitored or enforced.  It would have fallen to the reporting hospitals and ambulatory surgery facilities.

HIDI provides many reports to…

The following data are available to MHA-member hospitals.

Hospital Inpatient Reports

These reports contain comprehensive information concerning hospital utilization patterns and patient characteristics and are valuable tools for hospital planning and evaluation. Available since 1986, the reports are mailed to member hospitals that provide inpatient discharge data. Beginning with the 2000 Hospital Inpatient Reports, inpatient discharge data for Missouri and Kansas are combined and reported at the hospital level. Participating Missouri hospitals may purchase reports for Kansas, and participating Kansas hospitals may purchase reports for Missouri. In 2003, the utilization rate tables for Missouri were added to the CD as a convenience to members. The tables report the 500 most frequent principal diagnoses, the 500 most frequent principal procedures and all diagnosis-related groups (DRG).

Interim Hospital Inpatient Reports

Hospital Outpatient Reports

Census Data

Management and Productivity Reports

Monthly Utilization Report

Do all states collect this type of data?

I searched through the 19 CSR 10-33.010. (The rule, effective since Dec. 31, 1992, established procedures for state reporting of patient abstract data for inpatients and outpatients by hospitals and ASCs.)  I did not find the word privacy.  I don’t know what privacy laws protect this data.