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What needs to change to have an on-line medical record?

30 Mar

We need a lot of things to change to have on-line personal data be it medical record or anything else…

1.  We need a system to securely and privately manage, share, protect and integrate the data for a population of 10 Billion or so people. (it does not currently exist and needs funding)  Healthcare is a Global problem.

2. We need a global legal system with laws and protection for personal data.   (There is no organization, group or entity that can protect personal data around the globe.)

3. We need to ensure that only subordinated Governments (those formed to protect individuals rights) have this technology,  else we fall prey to some form of extermination-ism (genocide) using this data.  We have to protect the individual at all times.

4. We need to define what is personal data. (part of this organizations mission)

5. We need to define who is managing our personal data and what control we have on that data. (doesn’t exist)

6. We need systems, people and technologies to audit and enforce any legal issues with the use of personal data. (doesn’t exist)

Is it time for real time data?

30 Mar

Government and private industry efficiencies:

The 2010 Census, the Electronic Medical Record (EMR), and Homeland Security are but three of the many examples where personal information is a major component.  They are also examples of run-away costs, inefficiency, or down-right failure. Information Management can do better.  It has to because it is spending scarce dollars where it should be saving them.  We have to find out why and do so soon as the road we are taking is leading in the wrong direction.

Should we have to collect census data on paper?

Should we have to wait 10 years for an update?

Which is it? Ammendment or Supreme Court?

30 Mar

Rule-of-law under the United States Constitution:

The issue of personal data and its privacy has yet to be adequately addressed by our rule-of-law based democracy, which raises the question,

do we need a new amendment to the Bill of Rights or can the same result be achieved through an interpretation of the U.S. Constitution by the Supreme Court?

Either way, we need something simple like…”Our government should take every measure to protect the significant personal data of every person in their persons, houses, papers, electronic records, and effects.”  This is similar to the Fourth (IV) Amendment which could be “interpreted” to include electronic data.  We believe that personal data including its electronic forms should be defined more clearly, legally.  While this won’t keep data from being collected by others about us — we will still have cameras taking pictures, wire taps for national security, people reading our emails for law enforcement, and social networks that provide  information about ourselves that is very personal – it will give us the same legal rights as we have with our other personal property. .

Personal Data

20 Jul

We believe the following are your rights to a variety of data and records.

Education; Birth and Death; Health Care; Pharmacy; Welfare; Social Security; Military; Public Service Records; Voting; Driving; Legal;

  1. Have the right to access your data and to know that it is secure
  2. Have the right to know the date, time, location and source of every data element
  3. Have the right to know if anyone is accessing your information.
  4. Have  the Federal Government provide your individual data in a simple, secure, private manner
  5. Never mix your data with the data of anyone else.
  6. Never use your data without your consent or due process.
  7. Never de-identify your data without your consent.